Epilepsy is the fourth most common neurological disorder behind migraine, stroke, and Alzheimers disease but receives significantly less federal funding. Hes the kind of kid thateven though he was dealing with his own thinghe would go to childrens hospital and visit every kid on the ward and would not leave until he saw every single person, says Victor Boyce. For some reason, it gets swept under the rug, especially if you compare it to cancer or Parkinsons or any of these other so-called mainstream diseases, says Victor Boyce. That upbringing may be where Maya got her quiet ferocity. Cameron Boyce Foundation To Host First-Ever Gala - The Blast You can also share this pamphlet from TCBF with friends and loved ones of a person with epilepsy. Its not witchcraft, its a medical condition and its not something that needs to be hidden away.. Fundraiser, Zendaya Recalls First Date at 15 to See Spider-Man in 3D, Jock Zonfrillo, Chef and 'MasterChef Australia' Judge, Dies at 46, John Oliver Mocks Matthew McConaughey's Five-Hour Virtual Motivational Seminar, Ali Wong, Ke Huy Quan, Sandra Oh, Stephanie Hsu Among Honorees at Gold Houses Inaugural Gold Gala, A Less Outrageous and Costume-y Met Gala? Would you find a way to thank them enough? Cameron Boyce Foundation launches 'Wielding Peace' campaign to end gun Do what you love and stay happy., The leaders of tomorrow are fierce and unafraid.. We quickly narrowed our focus to epilepsy since that took our sons life. They'll have holiday parties, and we used to go and hang out with the kids, she says. About SUDEP: Sudden Unexpected Death in Epilepsy (SUDEP) occurs when a seemingly healthy person with epilepsy dies for no known obvious reason. Sudden unexpected death in epilepsy: experience from a tertiary epilepsy centre in Cyprus with review of the literature. So its been not just a business or a charitable thing, its a passion and love thing.. Q: After the film Diary of a Wimpy Kid, when the TV show Jessie came out, there were not many Indian descendent characters young people could feel related to. Though the foundation has only been around for a little over a year, we have been able to accomplish so much with the help and support of many fans, peers and loved ones all of which I know he would be incredibly proud of., Libby also credits their inner circle including board of directors members like Camerons aunt Kamlyn Boyce, publicist Kasey Kitchen and nonprofit strategic advisor Heather Kun for helping the foundation take shape. On his birthday, he preferred to do something charitable. Let us slide into your DMs. Never miss a story sign up forPEOPLE's free daily newsletter to stay up-to-date on the best of what PEOPLE has to offer, from juicy celebrity news to compelling human interest stories. We use our voices to spread awareness as far and wide as possible. He had suffered only five seizures in his life, including the fatal one in 2019. We should have done much more of our own research, but we were told, basically, its not a big deal.. Shes looking to possibly act in a horror movie or return to the stage Maya recently portrayed Maggie in Arthur Millers After the Fall, in a production put on by her group of friends. Were beyond grateful for the continued support from people all over the world and are hopeful for whats to come this year.. Q: How can other young people get involved and collaborate with The Cameron Boyce Foundation? Even though most of my friends are going into creative fields, the ones who aren't are also kicking butt, taking names, and it's just really, really it's motivating for me.. 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The material on this site may not be reproduced, distributed, transmitted, cached or otherwise used, except with the prior written permission of Cond Nast. We have some exciting projects coming this year that will allow us to further our efforts in creating awareness for SUDEP, as well as ending gun violence. We work hard to be dynamic. Cameron Boyce Foundation | Charity Navigator Profile Q: For me, particularly, it is somehow hard to ask this question because everyone who knows or has followed the work of your beloved son, Cameron Boyce, has felt the instant rush of joy, love, and energy he still spreads in this world. Visit. While shes incredibly humble, its clear shes invested in and determined to better whatever cause she champions. She shares mindful strategies for self-care through online courses at Simple Wild Free. The Cameron Boyce Foundation (est. The gift comes on the heels of donations by the Cameron Boyce Foundation to Inner City Arts to provide underprivileged youth with outlets for creativity; the Actors Fund for COVID-19 relief efforts; and the Thirst Project for a clean water well in Uganda. Our main objective is to cure epilepsy by funding research and initiating education and awareness campaigns while still supporting important causes to Cameron. Learn more. Budget: Research for the people. 2023 CURE Epilepsy. Maya Boyce on College, Charity, and Keeping Cameron's Legacy Alive The Foundation was established in 2019 to honor Cameron's legacy. How? The Boyces were left to manage on their own. His grandmother, Jo Ann Boyce, was a civil rights pioneer who was one of the 12 Black students who became known as the Clinton 12 for being the first integrated into Clinton High School in Tennessee in 1956. He would literally give you the shirt off of his back. The donation, given in November to coincide with Epilepsy Awareness Month, is designed to support a young epilepsy researcher, and the inaugural gift is going to Cristina Reschke, Ph.D., of the Royal College of Surgeons in Ireland, and the Science Foundation Ireland FutureNeuro Research Centre, for her work in the restoration of circadian function as a therapy for epilepsy.